"The system just doesn’t work" Suffolk SEND parent calls for urgent reform
MPs are travelling to Westminster today to debate the topic
A Suffolk mother and SEND (Special Educational Needs and Disabilities) advocate says families are being "let down again and again" by a system that’s supposed to protect the most vulnerable children.
Nicola Graham, who has two children with additional needs, says navigating the SEND support system has taken a serious toll on her family’s mental health.
Speaking to us ahead of a debate in Parliament on SEND provision, she said:
"It’s been really difficult. Trying to get an EHCP is nothing short of a nightmare. We’ve faced constant delays, decisions that don’t make sense, and all while trying to learn the law ourselves to protect our children."
An EHCP, also known as the Education, Health and Care Plan, is a legal document outlining the specific support a child with significant needs should receive. But Nicola says plans are often vague and unworkable.
"Anyone reading it, whether they know my child or not, should understand what’s needed and be able to provide it. But that just isn’t happening," she said.
The impact
She told us that the delays and uncertainty can have serious consequences for children’s well-being.
"My daughter had her placement changed at the last minute. She took it personally; she thought the school didn’t want her. That really impacted her confidence and mental health," Nicola explained.
While her own children are now in a supportive setting, she says many others are still struggling to get help.
"There are children I support right now who still don’t know what school they’re going to in September. They’re leaving their current settings with no idea what’s next. That’s terrifying, especially for children with autism or anxiety, who need time to prepare for change."
Nicola works part-time as a SEND advocate and supports families across Suffolk and beyond. She says urgent change is needed to make the system fairer and faster.
"There needs to be accountability when the law isn’t followed. Right now, the only real option is a tribunal, but that process is long, draining, and expensive for families and the taxpayer. It shouldn't be this hard to get children the help they deserve."
She adds that many families simply don’t have the energy or knowledge to fight.
"I'm supporting over a dozen tribunal cases at the moment. But some people can’t do that – they’re exhausted. The system isn’t working. It’s just not fair."
A national concern
Nicola’s story comes as MPs gather in Westminster to discuss SEND support. The number of pupils receiving SEND provision in England has now risen to nearly 1 in 5, and the number of tribunal cases is sharply increasing too.
She says while she feels "incredibly lucky" that her children are now supported, she continues to advocate because of the injustice others still face.
"I hear a lot of desperation. I see a lot of tears. But if I can make a difference for even one family, that means something."
Suffolk county council have been contacted for a response.