A South Kesteven Councillor Defies Motor Neurone Disease at Rob Burrow Leeds Marathon
He hopes to inspire fundraising for future research
Three years after being diagnosed with Motor Neurone Disease (MND), South Kesteven council officer Sean Davies is beating the odds by taking part in today’s Rob Burrow Leeds Marathon relay.
Most people with MND don’t survive this long, but Sean’s inherited form of the condition responds to pioneering genetic treatment, allowing him to keep running—and inspiring his family and supporters.
Sean’s motivation comes from those who’ve supported MND research in the past. He said:
“The reason I’ve got this treatment is because people in the past have raised funds and so I’m running and I’m still walking because of people raising funds for research."
"I’ve been diagnosed myself now for almost three years, and normally within that three year period, most people, they certainly wouldn’t be running - over half of the people there would’ve died.”
Today, Sean is running alongside family members to raise awareness and funds for MND research, hoping his story will encourage others to support lifesaving breakthroughs.
Donations can be made online, and more information about MND is available from the MND Association.