Family of child with life limiting brain tumour call for more funding into brain cancers
Neve from Ash was diagnosed with a terminal brain tumour earlier this year and has been fundraising ever since
The family of a Surrey child with a life limiting brain tumour, says they want to see more money spent on brain cancer research
Brain tumours are the biggest cancer killer of people under 40, however according to the National Cancer Research institute, only receives 1% of national cancer research spending
Neve, 16, from Ash was diagnosed with a brain tumour earlier this year and has been fundraising since, she told us she hopes her story makes a difference
"It takes a long time to do research so it probably won't be able to help me out. Probably I've passed away before any cure for this cancer is created but I hope that, you know, in some time soon that they are able to create a cure."
As part of Neve's fundraising she has been raising funds to create care packages for children undergoing cancer treatment
Neve's mum Sian says there has to be change in the system
"There are very few options for people like Neve and it now involves fundraising to go overseas. Brain cancer is currently the biggest killer of people aged 40 and under and only gets 1 % of government funding.
It didn't cross our minds in this day and age you would go to a hospital and be told there is nothing we can do. We assumed there were options that you would try, it didn't across, know, children and parents are still being told go make memories."
Neve's tumour is a Diffuse Intrinsic Pontine Glioma tumour, which is classified as rare with only 30 children in the UK diagnosed with it
Sian told us more about what the tumour means
"There are more than 100 different types of brain tumours, all come different grades that come with all different kinds of complications, but the majority of them are life limiting.
Neve unfortunately has one that is very fast growing and therefore very life limiting. But the more awareness someone like Niamh raises, hopefully the more it will encourage people to support independent charities who are having to fund this research
Until it happens to you, I don't think you necessarily pay a lot of attention to it"